Dear Everyone...
First, PLEASE forgive me for writing this in English, but I am living in Germany and just want someone to talk to that may understand me.
My DEAR Father has Alzheimers and my Mother and I are the Caregivers that are looking after him at home.
My father has been in the late stages of Alzheimers for over 3 years now, and as many people know who have had to live with family members having Alzheimers, this is very difficult - these words just do not seem to explain what it really is like!
I have called many doctors(Supposed Experts(?)) in Munich asking for help with my father as the medication that he has been taking to stop his repeated shouting is making him shout more and more - their response is VERY dissapointing!
CAN Any of you imagine what it is like living with a person who shouts VERY loud once every 5 or so seconds for over 10 hours - sleeps for a few hours and then begins shouting again... I can PROMISE you that you have no idea!
I am writing this email to tell these expert doctors one very very important piece of information which NONE that I have met so far seem to understand... or even care about:
"The care giver is a person who is under more stress that you can imagine - you may think that you know what it is like, but I can assure you that you have NO idea, yes, NO idea... and when you speak to these Care Givers, please show some kind respect for them and not treat them as a number for whom you have NO time for!... In my eyes, any EXPERT who does this is NOT worthy of this title, NOR that of a Doctor, and should not be interacting with patients having Alzheimers! This is a VERY Cruel Disease and most people turn their back on people having this disease - so RESPECT to those people who fight to deal with this disease affecting their loved one through to the end."
All the doctors that I have met so far seem to have one major problem and that is to open their heart to Care Givers and patients - why is this so difficult???
The REAL doctor in my eyes is one which will always try to LEARN from a caregiver as this is a person who has been through more stress and frustration and learned the hard way through trial and error... this can not be taught to anyone by a book - these Care Givers are the REAL Doctors!!! All I seem to get from a Doctor is one-way advise and never one who works with me to find a solution. Again, why is an Alzheimer patient always a NUMBER?
I have hope, and I will continue to look for that special Doctor out there who treats patients and Caregives with an open caring heart. This person is so vary rare and is somewhere out there... it is just so sad that they are difficult to find.
I do hope that someone can learn from this email and allow themselves to become a better person by it.
A very frustrated and Disappointed Care Giver
Brendon
First, PLEASE forgive me for writing this in English, but I am living in Germany and just want someone to talk to that may understand me.
My DEAR Father has Alzheimers and my Mother and I are the Caregivers that are looking after him at home.
My father has been in the late stages of Alzheimers for over 3 years now, and as many people know who have had to live with family members having Alzheimers, this is very difficult - these words just do not seem to explain what it really is like!
I have called many doctors(Supposed Experts(?)) in Munich asking for help with my father as the medication that he has been taking to stop his repeated shouting is making him shout more and more - their response is VERY dissapointing!
CAN Any of you imagine what it is like living with a person who shouts VERY loud once every 5 or so seconds for over 10 hours - sleeps for a few hours and then begins shouting again... I can PROMISE you that you have no idea!
I am writing this email to tell these expert doctors one very very important piece of information which NONE that I have met so far seem to understand... or even care about:
"The care giver is a person who is under more stress that you can imagine - you may think that you know what it is like, but I can assure you that you have NO idea, yes, NO idea... and when you speak to these Care Givers, please show some kind respect for them and not treat them as a number for whom you have NO time for!... In my eyes, any EXPERT who does this is NOT worthy of this title, NOR that of a Doctor, and should not be interacting with patients having Alzheimers! This is a VERY Cruel Disease and most people turn their back on people having this disease - so RESPECT to those people who fight to deal with this disease affecting their loved one through to the end."
All the doctors that I have met so far seem to have one major problem and that is to open their heart to Care Givers and patients - why is this so difficult???
The REAL doctor in my eyes is one which will always try to LEARN from a caregiver as this is a person who has been through more stress and frustration and learned the hard way through trial and error... this can not be taught to anyone by a book - these Care Givers are the REAL Doctors!!! All I seem to get from a Doctor is one-way advise and never one who works with me to find a solution. Again, why is an Alzheimer patient always a NUMBER?
I have hope, and I will continue to look for that special Doctor out there who treats patients and Caregives with an open caring heart. This person is so vary rare and is somewhere out there... it is just so sad that they are difficult to find.
I do hope that someone can learn from this email and allow themselves to become a better person by it.
A very frustrated and Disappointed Care Giver
Brendon
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